|
The Paget Foundation is an independent, not-for-profit organization dedicated to addressing Paget's disease of the bone and other bone disorders. The Paget Foundation is not affiliated with Novartis Pharmaceuticals.
The Paget Foundation
Since its inception 25 years ago, the Paget Foundation has been providing up-to-date information on Paget's disease to doctors and helping patients obtain the best possible treatment.
Twenty-five years ago, Paget's disease was a relatively unrecognized disorder, partly because there had been no effective treatment. The introduction of salmon calcitonin, in 1978, as the first-approved therapy for Paget's disease prompted the founding of the Paget Foundation.
The Paget Foundation has worked diligently to increase the awareness of manifestations of Paget's disease by practicing physicians and to make them aware of the growing number of drugs available for treatment, many of them developed with the Paget Foundation's support.
The Paget Foundation has played a strategic role in supporting clinical research by recruiting patient volunteers for every drug study for Paget's disease in the U.S. since 1990. This effort has helped gain FDA approval for several effective treatment therapies.
Since its inception, the Paget Foundation has sought Government funding for research, making its mission known in the halls of Congress by direct contact with members of appropriations committees and others, and by submitting oral and written testimony to make the case for expanded research on all bone diseases. Over the years, joined by many bone disease specialists and patients, members of the Paget Foundation have traveled to Washington, D.C. to articulate the need for research funds.
The Paget Foundation has produced a newsletter since 1978 for patients and their families and for anyone interested in Paget's disease and related bone disorders. Published three times a year, the newsletter contains articles on treatment, research and any number of subjects of interest to patients and health providers.
The Paget Foundation's vision of the future sees three objectives. First, to improve their financial resources, the funding to carry out their continuing mission. The other two aims constitute that mission: research leading to discoveries that translate into new and better therapies for metabolic bone disorders; and expansion of education and care capabilities throughout the world.
The Paget Foundation Needs Your Support
Learn more about the Paget Foundation
Make a contribution
| 
Resources